The cost of coeliac disease

There were lots of things I was completely ignorant to when it came to coeliac disease. My best friend has been diagnosed with it for about 10 years now but I still had no idea about the cross-contamination side of things until Charlotte was diagnosed.

Did you know that even a crumb of normal bread can actually harm someone with coeliac disease? This isn’t just an intolerance where you might get a bit bloated, gluten actually kills part of a sufferers intestines so that it can no longer absorb vital nutrients. 

Because of this it is suggested that you should change a number of things which you may never be able to say is completely gluten free. So the literal cost of coeliac disease for us so far is…

1 toaster £25

3 baking trays £7.50

3 chopping boards £5

2 non-stick frying pans £25

4 plastic spatulas £8

3 mixing bowls £14

Officially I shouldn’t use a dishwasher which has previously washed glutenend items but unfortunately my budget doesn’t stretch to a brand new dishwasher quite yet, although I am thinking its a very good excuse to bring my ‘new kitchen’ project forward a bit!

Carefully chosen gluten free picnic courteousy of M&S

This doesn’t even take into account the fact that gluten free products are SO much more expensive to buy that the gluten filled alternatives. Bread which tastes similar to normal bread can have a mark up of at least £2 more than your average white sliced loaf. 

Luckily, in most of the UK, diagnosed sufferers can get some items on prescription, however, this is a minefield and we’re currently trying out every option available to find out what is edible and what is definitely not! 

There is talk of the prescriptions being scrapped, especially adult ones and if they’re not scrapping them, they’re making the list of things you can have shorter by the day. Thankfully Warwickshire seems to be holding on to most items for now but I’m sure it’s only a matter of time. 

Obviously the biggest cost is Charlotte’s health and this is the reason I am happy to pay for all these items…now just to work on friends, family, restaurants and schools to make sure they’re as precious about her health as I am. 

Healthy kid!

2 Comments

  1. Gym Bunny Mummy

    August 5, 2016 at 6:27 pm

    I’m having blood tests in a couple of weeks to see if I have this. I previously was diagnosed with IBS & whilst I avoided most things with gluten I was never overly strict. Recently I’ve been so ill & really suffering, the doctor thinks I might have been misdiagnosed. I never realised how severe this is, I really need to change a lot of things. I hope your little girl starts to see improvements soon xx

    1. theperfectjuggler

      August 5, 2016 at 6:30 pm

      Thanks lovely and I hope you get answers soon. It has made such a difference to Charlotte in so many ways. Mood, growth, sleep not to mention the tummy aches and pins and needles have reduced dramatically. Hope you feel better soon and feel free to message if you want any more information xx

Leave a Reply